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Sarcoidosis: A Mysterious Disease
Latest News 11/26/19 Latest News 11/26/19

Sarcoidosis: A Mysterious Disease

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Navigating Sarcoidosis Webinar
Latest News 11/26/19 Latest News 11/26/19

Navigating Sarcoidosis Webinar

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View fullsize Robin was active, strong, and used to pushing her limits.⁠ Then things started to shift.⁠ ⁠ Shortness of breath. Fatigue. Vertigo. Eventually, double vision while driving.⁠ ⁠ What followed was months of testing before she was diagnosed with neurosarc
View fullsize There’s a new study that people in this space are paying close attention to.⁠ ⁠ A recent Phase 2 trial showed strong results for a treatment targeting cutaneous sarcoidosis, with patients seeing real, measurable improvement compared to placebo.
View fullsize Support doesn’t have to be complicated to matter. It can look like listening without trying to fix things, checking in consistently, and giving someone space when they need it.⁠ ⁠ It also means being patient when energy levels change and taking
View fullsize Living with sarcoidosis includes a lot that isn’t visible.⁠ ⁠ Tracking symptoms day to day.⁠ Managing fatigue.⁠ Keeping up with medications and appointments.⁠ Learning how to ask the right questions.⁠ Advocating for care when answers aren&rsquo
View fullsize This week, something important happened.⁠ ⁠ A bipartisan Congressional Sarcoidosis Caucus was officially launched after Congressman Josh Gottheimer lost his mother to the disease.⁠ That matters more than it might seem.⁠ ⁠ Because when something reach
View fullsize Tammy collapsed at work with no warning.⁠ ⁠ She ended up needing a pacemaker, but no one could explain why it happened. Everything pointed to her heart, but nothing fully made sense.⁠ ⁠ A year later, after noticing a rash and going through more testi

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