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View fullsize There’s a lot that comes with living with a chronic illness that doesn’t get talked about enough.⁠ ⁠ The mental load is constant. Keeping track of symptoms, appointments, medications, and how your body feels each day takes real effort. It
View fullsize We are so thankful for the wonderful weekend supporting Sarcoidosis Awareness! #sarcoidosisawareness #lifeandbreath
View fullsize Robin was active, strong, and used to pushing her limits.⁠ Then things started to shift.⁠ ⁠ Shortness of breath. Fatigue. Vertigo. Eventually, double vision while driving.⁠ ⁠ What followed was months of testing before she was diagnosed with neurosarc
View fullsize There’s a new study that people in this space are paying close attention to.⁠ ⁠ A recent Phase 2 trial showed strong results for a treatment targeting cutaneous sarcoidosis, with patients seeing real, measurable improvement compared to placebo.
View fullsize Support doesn’t have to be complicated to matter. It can look like listening without trying to fix things, checking in consistently, and giving someone space when they need it.⁠ ⁠ It also means being patient when energy levels change and taking
View fullsize Living with sarcoidosis includes a lot that isn’t visible.⁠ ⁠ Tracking symptoms day to day.⁠ Managing fatigue.⁠ Keeping up with medications and appointments.⁠ Learning how to ask the right questions.⁠ Advocating for care when answers aren&rsquo

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